Bone marrow – some more info :)
Every week we go to clinic, and usually on the first day of clinic for that week, we see the PA, and the MD, as well as get labs, dressing changes, and whatever treatments are needed. It can make for a pretty long day at clinic. Well, so yesterday at clinic, the MD told us that my bone marrow results showed 100% Donor cells only, and my labs showed that the bone marrow is actually making red blood cells. yeah! They do not have any results back on the flt#3 gene, and I’m not sure what they are looking for.
My liver enzymes are slightly elevated so they will be watching that closely and I go back to clinic on wednesday for more labs. I have a rash on chest, and belly that itches like I don’t know. It may be a graft vs. host thing. But I’m not sure. I just know it itches!!!!
It looks like we are getting over hurdle after hurdle. God is so Good!!! I think the next hurdle is that the new graft/immune system does not attack me or any of my vital organs! It seems so strong and is working so well already! I am still on prednisone and prograft (anti-rejection medications) and that’s their job to keep the graft “in check” until it gets comfortable in my body. These medications also lower the immune system so even though I have this great new one, I have to be extra careful not to catch anything. These meds also make me feel really crazy at times. Right now I’m feeling pretty good, but it can change at any moment and then I am a crying, shaking, can’t think…basket case. It can be scary. Well, this whole process has been amazing and sometimes overwhelming.
My esaphagus still gives me the most trouble. its the only thing that causes any pain. And I have a very dry mouth. It think my salivary glands are on vacation!!!
I am so thankful for all the support I have gotten. I don’t know what I would have done. Don and my family, and his family and everyone that have pitched in to help with children and animals and taking care of my home in Panama City, and ….there is too many things to mention. I could go on and on…I hope I get to somehow give back for all that has been given to me.
I miss my children very badly and need a kid fix. Hoping to get them soon…
love karen
All Praise and Thanks be to God!!!! My husband and I pray for your several, several, times a day. I so hope and pray that you will be healed and we will get to meet you some day. You are such a strong lady and loved by so very many. Ellie and I try to keep Dad updated on how you are doing, I can’t wait to tell him the good news, he is very concerned about you too. I have also been updating the Prayer Team here, so I will share your good news and pray that you continue to receive positive news and will get to go home to your family and live a long prosperous life. You are always in our thoughts and prayers, Your Cousin, Cindy
KAREN JUST WANTED YOU TO KNOW I KEEP UP WITH YOU ON YOUR WEBSITE. I ALWAYS TELL DEBBIE WHATS GOING ON. I ONLY GOT TO MEET YOU AFEW TIMES AT YOUR MOMS AND AT HORSE SHOWS . BUT I HAD ALWAYS LOVED YOUR FAMILY I THINK YOU HAD A WONDERFUL MOM I KNOW JUST HOW KIND HEARTED SHE WAS TO DEB WHEN HER BARN BURNT AND YOUR MOM AND DEB’S HUSBAND MADE IT POSSIBLE TO FIND HER HORSE FROM MANY YEARS AND WENT AND GOT HIM. SO DEBBIE HAD SHADOW HE IS STILL WITH US. DEB’S HUSBAND DAVID HAS BEEN ILL WITH BLOOD CLOTS SO WE ARE TRYING TO FIND OUT WHAT IS CAUSING HIS BLOOD TO DO THAT. SO SHE IS NOT ON THE COMPUTER MUCH. THIS HAPPEN TO DAVID DAY AFTER MOTHERS DAY. SO WE ARE ALL PRAYING AND I KNOW YOUR FAMILY WILL PRAY ALSO.BUT I SAY A PRAY FOR YOU AND FAMILY EVERY NIGHT AND I KNOW IN AUGUST YOU WILL BE BACK TO YOUR SELF. THERE HAVE BEEN A LOT OF PRAYERS ALREADY ANSWER AND YOU ARE SO REMARKABLE TO KEEP EVERYONE UP BEAT. GOD BLESS
Praise God !!! I know you will walk through this with the Victory Yours!!! Prayers are so wonderful and precious, and especially for you !! God listens and we are sooo thankful !!! You have been a valient warrior and blessing to all of us to see Gods Plans working through you. Keep up the good fight and we will continue to pray and praise .. Love you kiddo. Auntie M
Karen,
I just wanted you to know my family and I are still praying for you. It is really neat to hear and read about what God has been doing. We wish you His absolute best.
Love in Christ,
Chris & Stefanie Love
Hi Karen
Happy to hear the you are making progress. You are so right, GOD IS AWESOME!!!! Prayers do work. Keep up the good work and know that your are in our thoughts and prayers.
Love
Uncle Tom & Aunt Ellie
KAREN,
Good to hear about your news.. Mom has retired now. She doesn’t have internet at home. I will keep her informed of your postings.. We love you. We all are praying for you daily. If you all need anything have your mom & dad call. We love you. Always thinking of you..
family in WV
Angie