Karen's Day at Shands

Karen wanted a place for family and friends to be able to see how she is doing each day at Shands. This is how she is making that happen.

Thinking of Karen

January5

To my Karen: I love you.
To her followers: Thank you. The funeral services were this morning and I have stayed busy ever since and it is almost midnight. I wanted to get home to and write this message to thank everyone. And I do mean everyone. Those that were there and those that were thinking of us. It was an amazing service from where I sat. Some people didn’t have seats at all. The chapel was filled to capacity. People were standing along the walls. Even more were in the hall looking in. I have video but have not had a chance to watch it yet. I have still shots, too. Special thanks to my brother Darrell and his wife Holly for helping with that. Thanks to our pall bearers; Darren McIver, John Sprague, Gene Cornelius, Mike Giese, Keith Furbee, Bill Fitzgerald and Carlos Isaziga. Jack Reese of Jenks Avenue Church of Christ led the service. He has known Karen for a long time and extended family (Randy Wright) and her children Randy and Heather still go there. Jack did a great job and delivered a wonderful eulogy that honored Karen’s life but mostly her strength through the past 15 months. He remembered, as well did I, that when Karen was being taken on a gurney to surgery on September 23, 2009, both he and Carlos Isaziga caught up to us in the hallway before we made it into the surgery area. The transporters stopped and gave the four of us a moment to have a prayer. Surgery went well but two weeks later we found out that there were Leukemia cells in the tissue they had removed. He also recalled seeing Karen and I as we joined church service one of the Sunday’s that we were able to be in Panama City after her treatments had been going on a few months. What he noticed the most was not the colorful scarf but her smiling face as many of her old church family gathered around her, letting her know how much they loved her and were praying for her. That happy, smiling and beautiful face is what most people tell us they will always remember. Her family and I are very pleased that so many of you think of her that way because it is how we will always remember her, also.

There was a very heavy rainstorm happening at the end of the service which I felt was perfect! Seriously. It meant that rather than load up and go to the grave site, we were able to stay at Southerland. This gave people one more chance to see our sweet Karen and then talk with the family in the lobby. Another blessing for our family. We would like to let every single person who attended the service know what your presence meant to us. Whether it was because they knew Karen personally or were just there to show how much they cared for one of the family and felt the sadness that comes from losing a loved one, we were very touched by your support and love. I wish I could stand in front of each of you one more time, look into your face and hug you again. Especially the people who I did not actually get to greet last night or today. Wow! It was so crowded!!

If you don’t mind I would like to recognize three other specific groups that many of our guests belonged to. Eastgate Christian Fellowship is another church family that Karen has belonged to and still had ties to. Jacob, Dylan and their Dad Dennis Gallagher still go there. It is a fantastic church and their pastor, Rob Woodrum, was at the service as well. Karen’s parents have been part of the church family at Youngstown Baptist Church for a few years. There were many from there that came to see us as well. We were blessed to have Campus Pastor – Joe McLendon, there, too. The local Realtors turned out in mass. I had been a Realtor myself for 11 years and then worked at the Association office for 5 years prior to Karen’s diagnosis. Karen was able to attend one or two events a year with me for about 4 years. Not that many times when you think about it, but she had met many of the members with me. Both members that knew her and those that did not attended to offer me words of encouragement, understanding and support.

There were over 40 beautiful floral arrangements and plants. Thank you all so much.

Southerland on 19th Street

January2

Visitation services will be on Tuesday, December 4, 2010 from 4:00 – 6:00PM.
Chapel service will start promptly at 10:00AM on Wednesday, Decemeber 5.
Please come early if you did not make it to Visitation. We will start arriving around 9:00AM.

To Our Karen: I Love You

January1

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Karen made it to 2011

January1

Don: New Years Eve Karen went to the emergency room at BMC. We went around 10:00pm. She was feeling weak and felt like she needed oxygen and also maybe her sugar was low. Some where around 12:30am we said “Happy New Year” and she remarked that she made it to 2011. After they did some lab work and took xrays and did a CT with contrast of the lungs, they decided to admit her. Shortly after getting into her room her heart stopped. They revived her with chest compressions and she is now on a ventilation tube and doesn’t respond to anything. She does swallow once in a while, that is good. Prayers are needed for her to fully come back to us. We are not really sure why the heart stopped. Basically it seems to have just slowed down and stopped. It may have had something to do with electrolytes being low, compounded by the many other issues that have been brought on by the treatments for the Leukemia. We may know more later.
– Dear God. Karen’s work here is not yet done. Please give her the time to complete the tasks that you have set before her. Please let her wake up so we can all tell her one more time, how much we love her.

Merry Christmas from Karen and Don

December25

Don: We are home, after all. The kids joined us Wednesday night and we had our Christman on Thursday. Friday they went home and we went in to clinic. They ran their labs on her blood and everything was within exceptable rangees. She sometimes needs plateletts but not this time. Since it was Christmas Eve they gave her some anyway and sent us on our way to Panama City. We have an appointment on Tuesday but we are in PC today!! Great to be home after 60 days. We went to Shands week before Halloween. Think about all you have done in that amount of time. For all of that but the last week, Karen was in Shands. That is a real drag…. but we are home for Christmas and that is a blessing! So once again, Merry Christmas. Don’t forget the reason for the season. Amen.

Tomorrow is Christmas Day

December22

Don: OK, it isn’t Christmas Day for real but it will be the day we get to celebrate it with the kids and Karen’s parents. They will arrive tonight and stay all day tomorrow and leave on Friday. Karen is very excited to she her babies! Last year we had our celebration a whole week early in PC because we were going back to Shands before Christmas. It was wonderful. This year we are celebrating at the Red Roof Inn. We are rejoicing at having the family together, even if it isn’t at home or on the right day. It is going to be great! Merry Christmas to you all. Thanks for coming by.

Guess who got out on the 15th

December19

Don: On Monday, Karen told the Doctor she wanted out of the hospital. He said, “OK. You can go on Wednesday.” Guess what? It really happened. It didn’t go real smooth and took ALL day but we got out. Things have improved on some points and still need improvement on others but none of that matters at the moment. She is out! This really helps her spirits a lot. We don’t know what is going to happen for Christmas. We may be able to run home for a short break. If not, Dennis and the kids are putting together a plan to have the kids here for about two days. Either way we do plan on having some time with the family. Merry Christmas to you all.

Let’s look at the good news

December8

Don: Karen’s counts are on the rise again. They had leveled out and even dropped a little. Now they are 1500. Her white blood cells are part of the formula that comes up with that number. Yesterday they made it up to 1.4 and today they are at 1.9. On Dec 3rd I posted a note and mentioned that Karen had a bone marrow biopsy and we were waiting for the results. We got them that evening. No leukemia cells, small clusters of red cells and small clusters of white cells. Cancer is officially in remission again. Let’s pray that they can keep it that way this time!!

We do have an issue or two that is keeping us in the hosptial but we can talk about those later. I mentioned that main one in the last message.

NG tube – good and bad

December8

Don: A couple of weeks ago Karen was going to need a CT of her tummy and digestive area and they needed her to be clear as possible. That means she had to drink Go Lightly. A whole gallon. There was really no way she was going to be able to drink the amount they wanted her to have. She asked for an NG tube so they could put it into her belly without having to swallow it. Good thing she went that route because the one gallon the first night was not enough. She had to do it again the next night to be ready for the procedure.

A couple of days ago I got to see the NG tube in action (sort of) again but this time it was for evacuating the tummy as she currently has an obstruction just pass the belly. Pressure was building up so much that each morning she would throw up and then would feel better. Her little tummy was really distended because it was not relieving her of all the discomfort. Another good use of an NG tube.

You might think that they are simple and foolproof. They almost are. The biggest problem, especially for evacuating, is that the tube must be the right distance into the tummy. They measure from the nose to the ear and then down to the tummy on the outside and use that as a guide. After placement they pump some air into the tube using a big syringe and listen to see if they hear bubbles in the tummy. Then they hook you up to the suction device and see what happens. If it doesn’t completely place well, then they get an xray and put in a little more or pull it out some. Let’s just say that the first night it didn’t work well, the next day and night weren’t much better and on the next day they pulled out the first tube to put in a bigger tube. Things started moving, then stopped. They did an xray and found they weren’t deep enough. 15 cm needed to go in. Started working, then stopped. Finally did another xray and found out that the hose was too long and looped up and must have pinched off. Pulled it out a little and things started working real well!

Wait! We aren’t done yet. During the early morning hours the tube came out of the tummy and out to the throat area. We had to push it back in. At least they had a mark on the tube so they knew where to put it without having to get an xray. Karen is understandably in a lot of discomfort in her nose and throat from all of this in and out movement of the tube. She does feel better in regards to the pressure though.

That wasn’t too much information for you all, was it? Prayers for comfort today please. She really needs an easy day after so many in a row of discomfort.

Let’s be honest

December5

Don: This cancer battle – being in Gainesville for most of 14 months, in Shands this time for more than twice the number of days we had to be in after Bone Marrow Transplant, missing the kids, our lives on hold and the list goes on – stinks. On so many levels we are frustrated because we are not in control. We are troubled about the one step forward, followed by the two steps back. We all feel it. Madeline and Ken feel it. Dennis, Dylan and Jacob feel it. Ma, Big Randy, Randy and Heather feel it. Karen’s sisters, my brothers and Dad feel it. Don’t even try to list all of the friends, nurses and others who also know just how much this stinks. They feel it, too. That’s the honest truth.

I just got off the phone after having a conversation with Dennis. It reminded me that you all need to hear from us, even when things aren’t great and especially when they are. From where you guys sit, not knowing may be worse than knowing. Well, here is some more honesty. We are scared. When I say “we” I definitely mean every one of us. Yet we have a peace. The peace comes from the prayers that are said, over and over, for Karen by all of us. If you believe in Jesus and you believe in prayer, then you must feel a peace when your prayer ends. Madeline found a new song on YouTube that sums it up for all of us. Listen and see if you agree.

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